Posted by: eczemancipated | November 30, 2012

Changes For The Better

Looking back –

Coming off of steroids the first few weeks of May seemed liked a breeze. Only the itch increased and my right arm, wrist and hand became swollen to the point of cracking and bleeding. Painful, but “not bad” I thought, “piece of cake”. (Rolling eyes, nodding head.)

Little did I know…

By June, 4 weeks into it,  I was red, burning, itching, swollen, sleeping at least 16 hours daily, out of breath, freezing while on fire, in pain from abdomen to forehead, parts of the back of my shoulders, both arms, wrists and hands. My hands and arms had to stay bandaged all the time because of the cuts and open wounds. To top it off, I lost most of my cognitive thinking function. I was just totally incapacitated.

As a result I didn’t cook, clean, do laundry, read, write, drive or pretty much anything except eat, sleep and soak in the tub. My mom and husband made me jump on a trampoline daily to keep my lymph flowing but it was a struggle to do it for more than a couple of minutes. I didn’t leave the house sometimes for a week or so and if I did it was my mom or husband taking me for a very slow walk around the block or a short drive along the cliffs of Santa Cruz to see the ocean.

Conversation seemed incoherent to me since my thoughts were like whispers far in the distance and the words people said sounded like loud obscure noises. Ha ha! There were a couple of weeks that sound was so loud I constantly told people to lower their voice and turn the TV down.

Here I am at month 7, about to enter 8 next week. The intensity of all of my symptoms lessens each month. Now I can drive for about 10 minute intervals, carry on conversations, organize family finances and related paperwork, read short articles, type entries to this blog, do light cleaning, handle a load of laundry here and there, do ballet stretches for half hour or jump on the trampoline for 10 minutes straight, cook a meal and my sleep requirements are down to about 10-12 hours a day.

Although I am unable to do too many things in the same day, I’m happy to be able to wander about the house doing a bit of this and a bit of that. Understanding my limitations has become important, so I pace myself. I have learned that if I try to do too much, it ruins me and I wind up in bed most of the next day.

As the months pass, the light at the end of the tunnel is getting brighter and brighter with each new thing I can attend to during the day.


Changes for the better.


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