Posted by: eczemancipated | July 1, 2013

Month 15 Begins

Traveling to my parent’s home in the middle of May really took its toll. The weather in NJ when I arrived was intensely humid and it rained or thunder stormed about 10 of the 12 days I was there. As a result I got a rash all over my body that I haven’t had in a long time, most likely from the humidity. I also didn’t sleep for almost the first 5 days I was their due to the barometric pressure and time difference. So by the end of the first week I had a total melt down, I felt really bad for my mom cause I was uncontrollably crying I was so sick. But then the sun came out intermittently over the next few days and I was able to lay in the sunshine a few days. Also, I took a lot of Benadryl to knock myself out and I did much better the second week despite the weather.

I learned a lot about how much the weather can really dictate your progress through Red Skin Syndrome. Dr. Rapaport knows what he is talking about when he says you need sunshine daily. I live near the beach in California, you would think it was humid but the California climate is dry compared to the east coast. The dry climate apparently is a plus for recovery as it dries the weeping oozing skin. Having no sunshine also set me back quite a bit. There was a marked difference in my skin’s overall healing while in NJ once I was able to layout in the sun for an hour during two consecutive days.  Spending two weeks in NJ’s humid rainy weather (it was unusually rainy for the time of year) set me healing back a bit. So it took me the two weeks at home in California to really recover from the trip. Sun bathing 3-7 days a week has made an amazing difference. So I highly recommend that those suffering with RSS find a way to get sunshine, even if the weather is freezing.

I was able to visit both my Integrative Medicine Medical Group for an endocrine system check up from Dr. Elizabeth Lyster at Holtorf Medical Group. I have been seeing Dr. Lyster since October of 2011. Although she did not diagnose me with Topical Steroid Addiction, she is the physician who has locally been supporting me through this healing process and she is the physician who found I had Lyme disease diagnosis and helped us get a big picture of how ill I really was. For those of you who have been following my previous posts, my thyroid has really been on a roller coaster ride since before TSA/TSW. But for the first time in 2 years all of my blood test results showed that I was in normal ranges. Although the test results were still on the very high side of “normal” it means I’m getting closer to being well. (My thyroid globulin test was still out of range but only too high by 2 points. It had dropped 36 points from 58 to 22 which means I’m coming out of Hoshimoto’s disease. This is all without any medication only an herbal amino acid blend.)  Dr. Lyster was practically jumping for joy at how much progress I have made.

Later in the month I took the trip down to Dr. Rapaport’s office for my bi-monthly check up. He was thrilled to hear that I no longer experienced any burning flares. I only have itching eczema-like rashy skin and that my skin is returning to a more normal physical appearance. Although the elasticity of my skin on my ankles, knees, hands and lower arms is still not good, it is showing signs of progress. I no longer have to gauze my fingers, only my palms and wrists. Dr. Rapaport ordered that I get sunshine on my arms, wrists and hands which was new. He felt that my body could handle it. So for the last two weeks I have successfully getting sun on every part of my body without burning. You should see my tan lines. Haven’t been this tan in decades… Dr. Rapaport felt that if I am diligent with my sun bathing that I may find that I am totally clear by the end of the year – with the exception of my hands and wrists. The hands and wrists are still very fragile, super itchy and the skin is constantly splitting open. So it will probably be quite a while before I get full use of my hands without swelling, splitting and itching.

I do not have insomnia anymore because I am able to fall asleep before midnight every night. However I still wake up 2-4 times a night due to the itching. I think that my skin is healing so rapidly every night that I am shedding a layer while I’m sleeping and it’s very itchy.

The skin on my face is completely normal, I no longer have any eczema-like rash on my face. My neck and decollete are almost clear, probably another 2 months. The skin on these areas is very soft and rarely gets rashy.

I do still sweat like crazy at night, sometime I have to change clothes and pillow cases. It seems to be my neck area that sweats the most. Dr. Rapaport seems to think that I’m actually sweating like a normal person and that it may taper in intensity but that I should get used to sweating as this is what all normal people do. As a long-term topical corticosteroid user  I never sweat, so it takes a bit of getting used to.

My conversational ability is pretty much totally back in sync. I do stumble through sentences on occasion when my brain is taking a while to fire a synapse but I can hold my own now. I can also sing pretty well, like I got my voice range back – I’ve noted this while singing along to the radio in the car.

Overall, June was a good month. Right now I’m trying to learn to balance what I can accomplish with my energy level without totally tiring myself out. I have found that more often I wake up with a lot of energy and think that I can do more than I can and then I’m totally spent. Also I found that if I over do it my head is spinning and I feel really strange and have to lay down. I guess I can’t push it yet.


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