Posted by: eczemancipated | August 21, 2014

Month 28

I haven’t posted in a few months. But I think I’m in my 28th month of recovery from Topical Corticosteroid Addiction.  This means I’m 28 months off of all Corticosteroids like Topicals, Oral and Injection.

I have noticed in more recent months that the integrity of my skin has improved more still.  My hands, wrists & knees, being the worst areas, have thick elephant skin still. They are also still itchy, especially when I first wake up and between 4 – 5pm as well as in the middle of the night. However I generally only am awakened by the itching no more than twice a night. Unless I drink a lot of water after 8pm, then I may get up 3-4 times at night. So I typically finish all liquid intake between 8-9PM.

My body requires a less rigid diet. However, if I cheat more than a couple times a week then I swell up with fluid and get itchier as well as feel tired and lethargic. Generally I stay away from sugar, bread and eat very little meat. I can now eat Turkey and Lamb without a problem but I only crave it a couple times a month. I do have organic without added sulfite wine occasionally,  all other wine makes me puffy and itchy. I don’t drink beer it makes me itchy and puffy. Whiskey and Vodka seem to be the easiest in my body,  which I rarely drink.

I am able to work out at the gym 4-5 times a week,  so my endurance is building and my left leg is almost recovered. The aching in my auxilary muscles is mild and I work with a post rehabilitation trainer. My muscle extension is awesome and I am getting close to my previous flexibility.  It’s amazing how atrophied your body can get from being bed ridden and house bound.

My endocrine system is still unstable but has made leaps and bounds improvement.  Dr. Lyster says that I am officially “thyroid capable” because my T3 is finally in range, though on the high side. This means in the year ahead I should get closer to stable endocrine system. I have noticed that my monthly cycle is extremely regular and consistent, there is very little deviation in a 30 day period.

I have had 5 members of my family visiting over the last 5-6 weeks.  So my energy is pretty low and I’m burnt out. I need to sleep a lot and plan on being in bed for the next week or two to recuperate after this weekend is over.

Dr. Rapaport says I’m still looking good for a 36 month skin recovery. I’m hopeful but not unrealistic.

Well that’s all I can think of at the moment. Keep on keeping on!


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